Showing category "Medical Updates" (Show all posts)

What a Christmas Gift...

Posted by Nicki Thibodeaux on Wednesday, February 24, 2016, In : Medical Updates 

Thank you all for your prayers and support! Ryan finally was able to open his eyes on December 23 and was moved out of ICU the night before Christmas. 

Ryan was taken to Texas Children's Hospital on Sunday, December 14 for stomach pain and headache that we just could not get under control. Ryan had started taking human growth hormones (HGH) and these can cause a rare (like only one reported case) of brain swelling. The ER doctors wanted to release Ryan and have an eye doctor see him as an out ...


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Day 326 - Eleven Months Post Transplant

Posted by Nicki Thibodeaux on Thursday, February 21, 2013, In : Medical Updates 
Eleven months post-transplant and Ryan is ready to face the world again.  Ryan Calderon was born a healthy baby on June 9, 2003, but all that changed when Ryan was only four years old.  During Memorial weekend in 2008, Ryan became ill.  Ryan was taken to the emergency room at Texas Children's Hospital where he was diagnosed with Acute Lymphoblastic leukemia.

Ryan was admitted to the hospital and began chemotherapy treatments immediately.  After almost four years of chemotherapy and radiation t...
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Day 138 - A Non Typical Bone Marrow Transplant

Posted by Nicki Thibodeaux on Wednesday, August 15, 2012, In : Medical Updates 
I thought I would start this posting with a broad overview of a typical bone marrow transplant.

TYPICAL BONE MARROW TRANSPLANT

Bone marrow transplantations (BMT) is a medical procedure used to treat diseases once thought incurable such as leukemia.  In patients with leukemia, the stem cells in the bone marrow malfunctions, producing an excessive number of defective or immature blood cells or low blood cell counts.  The immature or defective blood cellls interfere with the productions of normal ...
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Day 100 Post Transplant

Posted by Nicki Thibodeaux on Wednesday, July 11, 2012, In : Medical Updates 
We had big plans for day 100 post transplant.  Antwaun was going to take Ryan out for a fancy meal since he would be able to eat out again and since it was so close to July 4, we were going to set off a bunch of fireworks later that night.  Unfortunately, our plans were changed.

Instead, Ryan's day 100 started off with a 4:00 am ambulance ride to Texas Children's were we found out that his red blood count was only 4.1.  Ryan received 5 pints of blood throughout the day to bring his red blood c...
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Day 79 Post Transplant - Father's Day

Posted by Nicki Thibodeaux on Sunday, June 17, 2012, In : Medical Updates 
I wish I had better news, but another holiday spent in the hospital.  Ryan has been in the hospital for 90 days now (minus the 5 days he was paroled) and he is tired.  On the positive side, he is improving and we may get to go home tomorrow after his bone marrow biopsy and spinal tap.

I wish I had more to say, but its been a pretty touch couple of months and I don't want to recap on all the medical conditions he has had to overcome, but they have been a lot and much more then we expected.
 
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Day 60 Post Transplant

Posted by Nicki Thibodeaux on Tuesday, May 29, 2012, In : Medical Updates 
It's been 60 days since Ryan received his transplant and we are still in the hospital.  Ryan did get to go home for 6 days but was not feeling well for most of the 6 days and was happy to come back to the hospital so the doctors can get him feeling better.  We are waiting on a CAT scan today to determine what's wrong with his lungs so that we can get the proper medication going, but the CMV and BK viruses are getting better in his blood stream.

When Ryan found out he was going to have to go ba...
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Day 38 Post Transplant

Posted by Nicki Thibodeaux on Tuesday, May 8, 2012, In : Medical Updates 
YES, WE ARE STILL AT THE HOSPITAL.  We keep thinking that Ryan will get released but we are having a hard time getting the CMV virus under control and unfortunately the medication they need to give him for it can ONLY be given in-patient.

Other than that, Ryan is doing great and although Ryan doesn't hold the record for being the longest in-patient post transplant patient, he is getting really close to breaking the record.  The sad part is, most patient have to stay in an extended stay facilit...
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Day 28 Post Transplant

Posted by Nicki Thibodeaux on Saturday, April 28, 2012, In : Medical Updates 
Its been 4 weeks since Ryan's bone marrow transplant and we are still in-patient at Texas Children's.  We did not get to go home last week as we hoped.  Ryan developed a few common side effects from his 4 years of chemotherapy, radiation, and most recent transplant.  I will attempt to summarize below:
  • 4/16 - 4/19:  Ryan received a drug called GCSF to help with the engraftment process.  As a result of receiving this drug, Ryan started to develop high fevers and back pain. 
  • 4/21 CT scan:  Since R...

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Day 19 Post Transplant

Posted by Nicki Thibodeaux on Wednesday, April 18, 2012, In : Medical Updates 
It's been 19 days since Ryan's received his bone marrow transplant and a friend of mine reminded me that's its been awhile since I posted an update.  Sorry about that...time just got way from me.

Ryan was doing fairly well up until last night when he spiked a fever of 102.3  We are hoping that the fever is due to one of the medications they gave Ryan to boost his white blood cell count but we won't know for sure until the blood cultures come back in 48 hours.

Prior to that, Ryan was doing great...
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Day 2 of Post Transplant

Posted by Nicki Thibodeaux on Monday, April 2, 2012, In : Medical Updates 
Ryan's big day took a lot longer then planned.  We thought Ryan would be getting his bone marrow transplant around 1:00 Friday afternoon.  As it turned out, Ryan did not get his transplant until midnight because his donor was in Germany and the bone marrow had to take a long flight to get here.  

As were were getting ready for the transplant, Ryan got a little nervous and his blood pressure skyrocketed so the doctors had to give him some medicine before we could get started.  After that, every...
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Day 0 of Transplant Treatment

Posted by Nicki Thibodeaux on Friday, March 30, 2012, In : Medical Updates 
Well, we are finally at Day 0 of 100 and its time to get Ryan's bone marrow transplant.  The 9 days leading up to today has been a mixer of good and bad days.  For the first 4 days while Ryan was getting ARA C (Chemotherapy) he had high fevers and was not feeling well at all.  All he wanted to do was sleep on the day bed in the room and have mom rub his head or back.  

Once he completed his ARA C treatment, Ryan bounced back rather quickly and was ready for visitors.  Ibrahima and Helen stoppe...
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Short Delay in Transplant Schedule

Posted by Nicki Thibodeaux on Thursday, March 15, 2012, In : Medical Updates 
Unfortunately Ryan's transplant schedule is being postponed for one week due to Ryan getting a cold.  Ryan was able to complete his cranial radiation (central nervous system) this week, but his central line surgery, admittance and full body radiation is being postponed by a week.  His new schedule is as follows:
  • Day -9 Wednesday, March 21:  Central-line surgery at TCH
  • Day -8 Thursday, March 22:  Admittance to TCH to prepare for transplant (Day 1 of a 4-6 week hospital stay).  Round one of ARA C...

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Getting Ready for the Bone Marrow Transplant

Posted by Nicki Thibodeaux on Tuesday, March 6, 2012, In : Medical Updates 
Well, its been a busy couple of weeks for Ryan and I, but things are moving along as smoothly as possible.  My bilateral mastectomy was performed on February 27, 2012 and everything went well with no complications.  During my admission however life was not put on hold, I was so looking forward to my surgery so that I could get a couple of days of rest, but that was not the case.  From my hospital bed, I had a consultation with Ryan's Radiologist that will be performing his central nervous sys...
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Top Eight Blessings in the Past Two Weeks

Posted by Nicki Thibodeaux on Sunday, February 12, 2012, In : Medical Updates 
In the past two weeks, Ryan and I have been very busy with moving, doctor visits, medical testing and unplanned hospital stays so I just wanted to apologize first for not being able to provide everyone a more timely update.  However, once you read our top eight (eight because Ryan is eight) list of miraculous events that have occurred, I hope you will forgive me:

TOP EIGHT BLESSINGS

  1. We have an awesome garage sale today and sold almost everything.  The house has been cleaned and ready for its ne...

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Kashi Clinical Labs - Bone Marrow Testing

Posted by Nicki Thibodeaux on Thursday, February 2, 2012, In : Medical Updates 
Several of you have said that you would be tested for a possible bone marrow match for Ryan but did not want to be included on the National Registry.  If you are interested, you can be tested through Kashi Clinical Laboratories.  It cost $165 for the standard TAT kit and there are three easy ways to order:
  1. Log on to www.bonemarrowtest.com and click on the left ORDER NOW tab,
  2. Call Diane at 877-626-4363, or
  3. Call the Lab directly at 877-527-4452
You will need the following information regarding Ryan...

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Day 17 of Induction Therapy

Posted by Nicki Thibodeaux on Wednesday, January 25, 2012, In : Medical Updates 
It's Day 17 of Induction therapy (or Wednesday evening).  Ryan has been in the hospital since Sunday evening when he came down with a fever and it looks like he will be here a couple more days.  On the positive side, he has completed his steroid treatments so the food cravings are getting less and his stomach is starting to go back to normal...and his is smiling again!

We are still desperately looking for a suitable bone marrow match for Ryan.  We got the test results on his sister and unfortu...
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Day 12 of Induction Therapy

Posted by Nicki Thibodeaux on Friday, January 20, 2012, In : Medical Updates 
It's day twelve of induction therapy and we have already been admitted to the hospital once, been in Triage twice and Ryan is having difficulty walking from all the steroids, but he is still in good spirits.  We were just at TCH to see if Ryan needs a platelet transfusion and thankfully he did not.

On January 16, 2012 we had our first bone marrow registry drive at Frontier Collision in Pearland, Texas.  Thank you Mike and Amanda Rackliff for hosting the event and everyone who came out to suppo...
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Day 4 of Induction Therapy

Posted by Nicki Thibodeaux on Friday, January 13, 2012, In : Medical Updates 
Well, it's day for of Induction therapy and we are already back in the hospital.  We came in for an eye irritation but will be spending the night since Ryan's heart beat and blood pressure were extremely low.  

In addition, we did hear back from Dr. Pui at St. Jude's Cancer Hospital and he concurred with the Texas Children's treatment plan so we will be staying here for Ryan's bone marrow transplant which Ryan is very happy about.  Ryan was very upset about moving to a different hospital and l...
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Second Opinion @ MD Anderson

Posted by Nicki Thibodeaux on Wednesday, January 11, 2012, In : Medical Updates 
It's Tuesday afternoon and Ryan just completed day 1 of Induction therapy at Texas Children's the day before.  We thought we had a plan but I wanted to see what MD Anderson could offer in terms of a bone marrow match.  I had heard that they were doing great things with stem cells and cord blood transplants and wanted to see what they had to say.  After all, its where I'm being treated.

John and I were shocked when we learned that MD Anderson would NOT recommend a bone marrow transplant at this...
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Bone Marrow Match Needed

Posted by Nicki Thibodeaux on Friday, January 6, 2012, In : Medical Updates 
It's about 2:30 in the afternoon and we got the call from Dr. Dreyer.  The Leukemia is definitely back, but luckily it is isolated to the spinal fluid and is not present in the bone marrow.  A small miracle.  Ryan will have go back into Induction therapy to get the Leukemia back into remission and then have a BONE MARROW TRANSPLANT.

Induction therapy will include weekly spinal taps where he will receive Vincristine (VCR) directly to the spinal cord.  Weekly doses of Daunorubicin inserted direc...
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The Christmas Holiday's

Posted by Nicki Thibodeaux on Tuesday, January 3, 2012, In : Medical Updates 
It's Wednesday morning and day 1 of Ryan's next 10-week cycle of maintenance chemotherapy.  Three more cycles to go and he will be done.  As usual Ryan has a routine spinal tap and I have a follow-up ultrasound at MD Anderson on the same day.  It's a normal day for us, we have both been down these roads before.  Ryan is doing great and well as for me, every time I go into MD Anderson there is some type of follow-up and after five years, you just stop thinking about it.  It's December 21, 2011...
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About Me


Ryan Calderon Not once, not twice but three time cancer survivor by the age of eight. Check out My Story, Updates, and my photo gallery to get a glimpse into what I have been up.